COVID-19 Insight 12: Our data

Page last updated: 12 May 2022
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COVID-19 Insight: Issue 12

Deaths notified by care homes

Note: The notifications only include those received by 4pm on Friday, 2 July 2021.

Date of notification Daily death notifications
10/04/2020 149
11/04/2020 79
12/04/2020 110
13/04/2020 290
14/04/2020 551
15/04/2020 481
16/04/2020 462
17/04/2020 465
18/04/2020 110
19/04/2020 101
20/04/2020 676
21/04/2020 587
22/04/2020 411
23/04/2020 455
24/04/2020 429
25/04/2020 75
26/04/2020 96
27/04/2020 715
28/04/2020 476
29/04/2020 374
30/04/2020 362
01/05/2020 342
02/05/2020 71
03/05/2020 53
04/05/2020 558
05/05/2020 336
06/05/2020 307
07/05/2020 295
08/05/2020 132
09/05/2020 54
10/05/2020 79
11/05/2020 476
12/05/2020 286
13/05/2020 221
14/05/2020 194
15/05/2020 226
16/05/2020 47
17/05/2020 45
18/05/2020 288
19/05/2020 203
20/05/2020 131
21/05/2020 134
22/05/2020 130
23/05/2020 15
24/05/2020 31
25/05/2020 70
26/05/2020 199
27/05/2020 119
28/05/2020 84
29/05/2020 107
30/05/2020 10
31/05/2020 16
01/06/2020 138
02/06/2020 123
03/06/2020 80
04/06/2020 59
05/06/2020 66
06/06/2020 17
07/06/2020 11
08/06/2020 107
09/06/2020 57
10/06/2020 50
11/06/2020 45
12/06/2020 42
13/06/2020 3
14/06/2020 1
15/06/2020 68
16/06/2020 39
17/06/2020 40
18/06/2020 33
19/06/2020 31
20/06/2020 4
21/06/2020 6
22/06/2020 48
23/06/2020 27
24/06/2020 24
25/06/2020 26
26/06/2020 26
27/06/2020 4
28/06/2020 8
29/06/2020 35
30/06/2020 28
01/07/2020 13
02/07/2020 10
03/07/2020 21
04/07/2020 2
05/07/2020 2
06/07/2020 25
07/07/2020 9
08/07/2020 19
09/07/2020 11
10/07/2020 11
11/07/2020 4
12/07/2020 2
13/07/2020 17
14/07/2020 11
15/07/2020 11
16/07/2020 4
17/07/2020 9
18/07/2020 0
19/07/2020 2
20/07/2020 8
21/07/2020 10
22/07/2020 13
23/07/2020 4
24/07/2020 4
25/07/2020 1
26/07/2020 0
27/07/2020 8
28/07/2020 13
29/07/2020 7
30/07/2020 9
31/07/2020 7
01/08/2020 0
02/08/2020 0
03/08/2020 11
04/08/2020 5
05/08/2020 3
06/08/2020 3
07/08/2020 8
08/08/2020 1
09/08/2020 1
10/08/2020 7
11/08/2020 3
12/08/2020 5
13/08/2020 8
14/08/2020 7
15/08/2020 0
16/08/2020 1
17/08/2020 8
18/08/2020 8
19/08/2020 4
20/08/2020 4
21/08/2020 1
22/08/2020 0
23/08/2020 1
24/08/2020 1
25/08/2020 3
26/08/2020 4
27/08/2020 7
28/08/2020 1
29/08/2020 0
30/08/2020 1
31/08/2020 1
01/09/2020 8
02/09/2020 1
03/09/2020 4
04/09/2020 2
05/09/2020 0
06/09/2020 1
07/09/2020 7
08/09/2020 1
09/09/2020 5
10/09/2020 4
11/09/2020 3
12/09/2020 0
13/09/2020 0
14/09/2020 8
15/09/2020 8
16/09/2020 5
17/09/2020 6
18/09/2020 7
19/09/2020 0
20/09/2020 2
21/09/2020 7
22/09/2020 10
23/09/2020 6
24/09/2020 3
25/09/2020 7
26/09/2020 1
27/09/2020 4
28/09/2020 11
29/09/2020 7
30/09/2020 9
01/10/2020 16
02/10/2020 13
03/10/2020 4
04/10/2020 0
05/10/2020 20
06/10/2020 6
07/10/2020 10
08/10/2020 16
09/10/2020 20
10/10/2020 4
11/10/2020 4
12/10/2020 30
13/10/2020 15
14/10/2020 15
15/10/2020 15
16/10/2020 19
17/10/2020 2
18/10/2020 2
19/10/2020 53
20/10/2020 32
21/10/2020 21
22/10/2020 21
23/10/2020 21
24/10/2020 6
25/10/2020 6
26/10/2020 48
27/10/2020 36
28/10/2020 22
29/10/2020 30
30/10/2020 42
31/10/2020 13
01/11/2020 12
02/11/2020 75
03/11/2020 76
04/11/2020 39
05/11/2020 38
06/11/2020 54
07/11/2020 12
08/11/2020 13
09/11/2020 93
10/11/2020 73
11/11/2020 74
12/11/2020 63
13/11/2020 54
14/11/2020 13
15/11/2020 10
16/11/2020 99
17/11/2020 74
18/11/2020 59
19/11/2020 74
20/11/2020 74
21/11/2020 14
22/11/2020 24
23/11/2020 136
24/11/2020 94
25/11/2020 86
26/11/2020 62
27/11/2020 67
28/11/2020 12
29/11/2020 17
30/11/2020 117
01/12/2020 91
02/12/2020 77
03/12/2020 60
04/12/2020 70
05/12/2020 10
06/12/2020 11
07/12/2020 115
08/12/2020 109
09/12/2020 73
10/12/2020 92
11/12/2020 71
12/12/2020 18
13/12/2020 33
14/12/2020 135
15/12/2020 90
16/12/2020 73
17/12/2020 82
18/12/2020 79
19/12/2020 17
20/12/2020 27
21/12/2020 153
22/12/2020 111
23/12/2020 111
24/12/2020 94
25/12/2020 17
26/12/2020 35
27/12/2020 56
28/12/2020 77
29/12/2020 184
30/12/2020 150
31/12/2020 118
01/01/2021 41
02/01/2021 43
03/01/2021 44
04/01/2021 200
05/01/2021 151
06/01/2021 137
07/01/2021 145
08/01/2021 150
09/01/2021 34
10/01/2021 63
11/01/2021 264
12/01/2021 252
13/01/2021 213
14/01/2021 228
15/01/2021 247
16/01/2021 60
17/01/2021 88
18/01/2021 443
19/01/2021 316
20/01/2021 319
21/01/2021 274
22/01/2021 266
23/01/2021 97
24/01/2021 86
25/01/2021 459
26/01/2021 350
27/01/2021 307
28/01/2021 285
29/01/2021 274
30/01/2021 70
31/01/2021 60
01/02/2021 405
02/02/2021 261
03/02/2021 238
04/02/2021 188
05/02/2021 187
06/02/2021 31
07/02/2021 45
08/02/2021 282
09/02/2021 184
10/02/2021 136
11/02/2021 139
12/02/2021 110
13/02/2021 31
14/02/2021 24
15/02/2021 176
16/02/2021 128
17/02/2021 114
18/02/2021 107
19/02/2021 86
20/02/2021 20
21/02/2021 21
22/02/2021 143
23/02/2021 66
24/02/2021 70
25/02/2021 32
26/02/2021 68
27/02/2021 10
28/02/2021 5
01/03/2021 77
02/03/2021 46
03/03/2021 45
04/03/2021 48
05/03/2021 38
06/03/2021 10
07/03/2021 4
08/03/2021 50
09/03/2021 34
10/03/2021 30
11/03/2021 18
12/03/2021 18
13/03/2021 1
14/03/2021 3
15/03/2021 25
16/03/2021 23
17/03/2021 13
18/03/2021 11
19/03/2021 21
20/03/2021 3
21/03/2021 6
22/03/2021 26
23/03/2021 21
24/03/2021 13
25/03/2021 9
26/03/2021 17
27/03/2021 3
28/03/2021 2
29/03/2021 25
30/03/2021 13
31/03/2021 5
01/04/2021 10
02/04/2021 2
03/04/2021 0
04/04/2021 0
05/04/2021 10
06/04/2021 6
07/04/2021 6
08/04/2021 12
09/04/2021 11
10/04/2021 0
11/04/2021 2
12/04/2021 12
13/04/2021 22
14/04/2021 7
15/04/2021 5
16/04/2021 3
17/04/2021 0
18/04/2021 1
19/04/2021 8
20/04/2021 2
21/04/2021 3
22/04/2021 13
23/04/2021 5
24/04/2021 1
25/04/2021 0
26/04/2021 6
27/04/2021 3
28/04/2021 2
29/04/2021 5
30/04/2021 3
01/05/2021 2
02/05/2021 0
03/05/2021 2
04/05/2021 13
05/05/2021 1
06/05/2021 2
07/05/2021 4
08/05/2021 2
09/05/2021 2
10/05/2021 5
11/05/2021 6
12/05/2021 4
13/05/2021 1
14/05/2021 3
15/05/2021 0
16/05/2021 0
17/05/2021 4
18/05/2021 0
19/05/2021 2
20/05/2021 0
21/05/2021 3
22/05/2021 1
23/05/2021 0
24/05/2021 4
25/05/2021 3
26/05/2021 8
27/05/2021 0
28/05/2021 2
29/05/2021 0
30/05/2021 0
31/05/2021 0
01/06/2021 2
02/06/2021 3
03/06/2021 3
04/06/2021 7
05/06/2021 1
06/06/2021 0
07/06/2021 1
08/06/2021 1
09/06/2021 2
10/06/2021 1
11/06/2021 0
12/06/2021 0
13/06/2021 0
14/06/2021 1
15/06/2021 4
16/06/2021 3
17/06/2021 0
18/06/2021 2
19/06/2021 0
20/06/2021 0
21/06/2021 4
22/06/2021 0
23/06/2021 0
24/06/2021 0
25/06/2021 1
26/06/2021 0
27/06/2021 1
28/06/2021 7
29/06/2021 0
30/06/2021 2
01/07/2021 7
02/07/2021 1

Source: CQC death notifications submitted 10/04/2020 to 02/07/2021

The chart shows the number of death notifications of people in care homes flagged with COVID-19 submitted each day up to 2 July 2021, with a seven-day moving average line showing the smoothed trend. The numbers of notifications of deaths appear to have peaked for the second time by late January 2021 and have been steadily falling since then.

Death notifications of people detained under the Mental Health Act (MHA)

Detained patients

This data includes detained patients on leave of absence, or absent without leave, from hospital, and conditionally discharged patients. ‘Detained patients’ also includes patients subject to holding powers such as sections 4, 5, 135 or 136, and patients recalled to hospital from CTO. These counts may also include notifications about the deaths of people subject to the MHA who are in the community and not in hospital.

Data on notifications may be updated over time and therefore successive extracts may lead to changes in overall numbers. These changes may relate to data cleaning or delays in notifying CQC of a death of a detained patient.

All providers registered with CQC must notify us about deaths of people who are detained, or liable to be detained, under the MHA. Based on date of notification, from 1 March 2020 to 2 July 2021, we have been notified of 168 deaths that mental health providers indicated were suspected or confirmed to be involving COVID-19 (an increase of two since we reported in June). A further eight deaths of detained patients involving COVID-19 were reported by other (non-mental health) providers (no further recorded deaths since we last reported).

Of the 581 notifications from mental health providers in the 2020/21 period (covering all causes of death from 1 March 2020 to 2 July 2021), 466 were from NHS organisations, of which 127 deaths were indicated as involving COVID-19, and 115 were from independent providers, of which 41 deaths were involving COVID-19.

We have identified 34 detained patients whose deaths have been notified to us from 1 March 2020 to 2 July 2021 who had a learning disability and/or were autistic: the majority (23) were not identified as involving confirmed or suspected COVID-19. Of these people, most also had a mental health diagnosis. Please note that these patients were identified both from a specific box being ticked on the notification form and a review of diagnoses in the free text of the form.

Table showing all notifications of deaths of detained patients (across all provider types) between 1 March 2020 and 2 July 2021, by age band, and COVID-19 status.
Age band 16-17 18-24 25-34 35-44 45-54 55-64 65-74 75-84 85+ Unknown Total
Suspected or confirmed COVID-19 0 1 4 9 11 29 39 49 22 12 176
Not COVID-19 4 20 42 37 54 71 70 70 23 51 442
Total 4 21 46 46 65 100 109 119 45 63 618
Table showing all notifications of deaths of detained patients (across all provider types) from 1 March 2020 to 2 July 2021, by gender and COVID-19 status.
Gender Female Male Transgender Unknown or unspecified Total
Suspected or confirmed COVID-19 57 105 0 14 176
Not COVID-19 139 248 1 54 442
Total 196 353 1 68 618
Table showing all notifications of deaths of detained patients (across all provider types) from 1 March 2020 to 2 July 2021, by ethnicity and COVID-19 status.
Ethnicity Suspected or confirmed COVID-19 Not COVID-19
Asian 7 9
Black 21 31
Mixed 7 10
Other ethnic groups 1 3
White 99 248
Unknown 22 40
Not stated 19 101
Total 176 442
Table showing all notifications of deaths of detained patients (across all provider types) from 1 March 2020 to 2 July 2021 by place of death and COVID-19 status.
Place of death Suspected or confirmed COVID-19 Not COVID-19
Medical ward 121 142
Psychiatric ward 40 140
Hospital grounds 1 8
Patient’s home 0 39
Public place 0 9
Other household 0 3
Other 3 53
Not stated 11 48
Total 176 442
Table showing the weekly MHA deaths in England (COVID-19 and non-COVID-19) from 1 March 2020 to 2 July 2021
Date of Death Non-COVID-19 deaths COVID-19 deaths
01 Mar 8 0
08 Mar 9 0
15 Mar 4 2
22 Mar 7 9
29 Mar 7 14
05 Apr 3 19
12 Apr 8 18
19 Apr 6 11
26 Apr 1 9
03 May 8 5
10 May 2 3
17 May 7 2
24 May 5 2
31 May 1 0
07 Jun 4 0
14 Jun 6 0
21 Jun 6 1
28 Jun 4 1
05 Jul 3 0
12 Jul 6 0
19 Jul 5 0
26 Jul 8 0
02 Aug 4 0
09 Aug 10 0
16 Aug 3 0
23 Aug 5 0
30 Aug 6 0
06 Sep 11 0
13 Sep 3 0
20 Sep 4 0
27 Sep 5 0
04 Oct 7 1
11 Oct 4 1
18 Oct 3 2
25 Oct 7 1
01 Nov 8 1
08 Nov 4 1
15 Nov 9 2
22 Nov 2 1
29 Nov 5 1
06 Dec 9 1
13 Dec 5 1
20 Dec 10 5
27 Dec 8 6
03 Jan 7 2
10 Jan 7 5
17 Jan 7 11
24 Jan 4 5
31 Jan 7 9
7 Feb 9 4
14 Feb 6 3
21 Feb 5 1
28 Feb 4 2
03 Mar 5 0
14 Mar 9 1
21 Mar 3 1
28 Mar 11 0
04 Apr 5 0
11 Apr 7 0
18 Apr 11 0
25 Apr 5 0
02 May 1 1
09 May 6 0
16 May 6 0
23 May 4 0
30 May 4 0
6 Jun 3 1
13 Jun 8 0
20 Jun 4 0
27 Jun 3 0

The chart shows the number of deaths notified to CQC based on the date of death. These figures will be lower than the counts of notifications presented in the previous section due to time lags in reporting and data cleaning. Data may be updated over time and therefore successive extracts may lead to changes in overall numbers.

We will also be reporting on the deaths of detained patients and deaths of patients subject to community treatment orders from 1 April 2020 to 31 March 2021 in our MHA annual report later in the year. This report will include further information about the causes of deaths, including COVID-19. The cause of deaths in detention are usually determined through the coroners’ courts, which leads to a delay for accurate statistical reporting.

Death notifications of people in services caring for people with a learning disability or autistic people

In June 2020, we first published data on the number of notifications of deaths of people who were receiving care from services that provide support for people with a learning disability or autistic people between 10 April and 15 May 2020. We have subsequently published a number of updates, extending the time period each time. This issue now covers deaths between 10 April 2020 and 31 March 2021.

This data is derived from death notifications submitted to CQC. A proportion of notifications are submitted as scans or are handwritten and cannot be included in this analysis. This means the numbers reported in this appendix and previous updates may be below the true numbers of deaths. In the 2020/21 period the proportion of unextractable notifications was 5.5%, and in the 2019/20 period it was 6.7%.

We are taking action to improve the way we capture and process information from providers through our notifications.

While unextractable notifications are not represented in published figures, throughout the pandemic we have used this information, alongside other information and any concerns received, to assess risks and make decisions about where to inspect, taking action to protect people where necessary.

The inclusion of a death notification in published figures is based on providers recording that a person had a learning disability or autism on the notification submitted to CQC.

We identified notifications of the deaths of at least 1,633 people with a learning disability or autistic people from services identified as caring for people with learning disabilities or autistic people between 10 April 2020 and 31 March 2021. This is 3% higher than the 1,581 deaths notified in the comparable period in 2019/20.

Of the 1,633 people with a learning disability or autistic people that we have identified as having died during the period in question, 486 were identified by the provider as deaths involving COVID-19 (either suspected or confirmed), and 1,147 were not identified as involving COVID-19.

Compared with the last time we updated this analysis (which covered the period 10 April to 16 November 2020), there now appear to be fewer deaths not involving COVID-19 in most age categories in 2020/21 than there were in the comparator period (2019/20 – comparing the purple columns with the dark blue segments).

Table showing the identified death notifications from providers of all types of services for people with learning disabilities and/or autism spectrum disorder that state the person who died had a learning disability or autism, by age and COVID-19 status for the years 2019/20 and 2020/21
Age group 2019-20 2020-21 (not COVID-19) 2020-21 (suspected or confirmed COVID-19)
47 21  
25-34 55 34 9
35-44 65 60 26
45-54 223 147 67
55-64 435 327 148
65-74 427 311 137
75-84 235 183 80
85+ 94 64 19
Total 1581 1147 486

Source: notifications of deaths under Statutory Notification 16 to CQC, 10 April 2020 to 31 March 2021, and comparable period in 2019/20.

Note: no bar is shown for 2020/21 (suspected or confirmed COVID-19) in the under-25 age category, as low numbers have been suppressed. The data covers all relevant service types but the vast majority come from community or residential social care.

Of the 1,633 people with a learning disability or autistic people that we have identified as having died, 1,592 were receiving care from adult social care settings.

Table showing the distribution by COVID-19 status and service type of notifications of deaths of people with a learning disability or autistic people
Primary inspection category Confirmed or Suspected COVID-19 Not COVID Total
Community-based adult social care services 210 551 761
Residential social care 268 563 831

We only show the breakdown of service types for adult social care. The remaining 41 deaths were of people notified to us by types of service in much lower numbers. To avoid identifying individuals we have not included them here.

ONS data on all weekly deaths in England (COVID and non-COVID) compared with the average for 2015-2019

Table showing the total weekly deaths in 2020 and 2021 compared with the average for 2015-2019
Week number Non covid-19 deaths 2020/21 Covid-19 deaths 2020/21 Sum of regional average deaths in England 2015-2019
Week 1 11443 0 11932
Week 2 13088 0 12083
Week 3 12197 0 11819
Week 4 11105 0 11404
Week 5 10868 0 11337
Week 6 10270 0 10916
Week 7 10196 0 10926
Week 8 10135 0 10652
Week 9 10140 0 10601
Week 10 10224 0 10501
Week 11 10318 5 10181
Week 12 9802 103 9909
Week 13 9888 525 9757
Week 14 12108 3331 9666
Week 15 11664 5899 9587
Week 16 12822 8335 9423
Week 17 13035 7806 9173
Week 18 11256 5748 9124
Week 19 8230 3716 9095
Week 20 10159 3624 8914
Week 21 9131 2455 8885
Week 22 7513 1715 8614
Week 23 8507 1488 8601
Week 24 8334 1057 8601
Week 25 7972 744 8649
Week 26 7840 574 8459
Week 27 8045 497 8681
Week 28 7759 344 8305
Week 29 7978 284 8524
Week 30 8108 209 8523
Week 31 8221 183 8206
Week 32 8237 128 8475
Week 33 8642 125 8445
Week 34 8895 126 8398
Week 35 8328 97 8353
Week 36 7158 74 8348
Week 37 9118 97 8545
Week 38 8821 134 8587
Week 39 8802 203 8835
Week 40 8961 296 8931
Week 41 8907 401 9150
Week 42 9211 622 9193
Week 43 9157 913 9193
Week 44 8908 1258 9432
Week 45 9191 1771 9540
Week 46 9221 2274 9544
Week 47 9204 2471 9620
Week 48 8825 2820 9785
Week 49 8827 2623 10135
Week 50 8930 2530 10318
Week 51 9384 2729 10656
Week 52 8049 2631 10825
Week 53 6494 2831 10825
Week 1 10793 5528 11932
Week 2 9964 6697 12083
Week 3 9476 7867 11819
Week 4 9312 7991 11404
Week 5 9139 6933 11337
Week 6 8959 5377 10916
Week 7 8972 3858 10926
Week 8 8971 2750 10652
Week 9 8770 1961 10601
Week 10 8730 1413 10501
Week 11 8647 906 10181
Week 12 8585 673 9909
Week 13 7269 384 9757
Week 14 7996 354 9666
Week 15 9294 340 9587
Week 16 8970 240 9423
Week 17 8778 192 9173
Week 18 7189 123 9124
Week 19 9243 145 9095
Week 20 9019 100 8914
Week 21 8822 92 8885
Week 22 7114 96 8614
Week 23 9347 80 8601
Week 24 8661 101 8601
Week 25 7900 97 8649

Source: ONS COVID/non-COVID 2020 and 2021 death data and 2015-2019 death data. Week 25, 2021: week ending 25 June 2021.

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COVID-19 Insight: Issue 12


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Previous issue

You can read the issue of the report that we published in June. This issue looked at the provider collaboration review of how services across seven local areas in England have worked together for people with a learning disability during the COVID-19 pandemic.

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